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UKRAINIAN MUSCULAR DYSTROPHY ASSOCIATION (MDA)
 

Lviv, Ukraine
www.erb.com.ua

 

The Ukrainian Muscular Dystrophy Association ERB is a non-governmental and non-profit organization registered by the Department of Justice of Ukraine. The Association was founded by a small group of people who were affected by the disease. From a tiny organization we have grown into the Ukrainian MDA and have many branches across the country.

The problems of muscular dystrophy in Ukraine have never been raised before. Ukrainian MDA first started work on establishing contacts with the affected people and their families.

The Association is run only by the disabled people from their homes, and a small number of volunteers. The Association is committed to provide information and support to disabled people with muscular dystrophy and their families. Among our programs the most important are informative and educational programs for patients, members of their families, other concerned individuals.

We publish the Association's ERB magazine (with explanations about the nature of muscular disorders), informative booklets, recommendations for parents with affected child. The book by A. Emery "Muscular Dystrophy, The Facts" has been recently translated into Ukrainian and is now ready for publication. The realization of our publishing programs has only become possible with the financial help of our supporters.

We would like to appeal to other international organizations, which are interested in international cooperation to fight genetic disorders.

Until now we have been relying on own efforts, but hope that enthusiasm of the MDA in combination with the experience of international organizations will enable us to help solve the common problem of Muscular Dystrophy.

Take a look at the Ukrainian Muscular Dystrophy Association website:  http://www.erb.com.ua

They would be extremely grateful for any donations you can make to their organization.


Ukrainian Muscular Dystrophy Association ERB
Shevchenko Street 55/11, Lviv-39 79039 Ukraine
Tel. (380 322) 33 00 47, E-mail:  erb@lviv.net,
Victor Mohyla, President; Victor Neschadym, Administrator
Tetiana Zayets', Executive Manager
 
 
 
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